Happy "Gotcha Day"

It was one year ago today that our lives changed. LiLi has grown over 5 inches and gained around 7 pounds in the year. In the beginning we thought she had suffered burns on her legs but it turned out to be a rare skin disorder called EB. We were quite scared at first because in serious cases it can be fatal or the child suffers mutiple serious problems. After finding a specialist in Miami we found that LiLi has a very mild case limited to her legs..she quite possibily will grow out of it in puberty.

LiLi is a real talker ..smarter than we are evidenced by the fact that she finishes our sentences when we can't think of a word (remember we're the old couple).. "did you take your aaah(mom)? ..medicine(LiLi). Just now I went to turn on the tv but couldn't find the remote.. Without any discussion of what I was doing or looking for she said "it's over there" and she was right.

Bedtime can be difficult .. lots of stalling ..LiLi wants another story, milk, needs a diaper change anything to delay .. She likes it when I put my hand on her chest and sing "Hush little LiLi don't you cry, PaPa going to sing you a lullaby"... she corrects me if I get the words wrong.

Last night at bedtime though she grabbed Pam's hand then my hand and looked and me and Pam and said "Mommie, Babba"....we waited...what was it ...another story... .milk...Then after a pause she said "I love you ..good night"

Happy Gotcha Day

John, Pam and LiLi

http://johndubrule2.spaces.live.com/

LiLi The Genuis

Today LiLi seemed to leap forward in her ability to communicate. She really seems not only to be able to talk but can remember her whole journey. We asked her if she remembered China. She did ..she said something in Chinese. We spoke our limited words in that language and asked her again to say something in Chinese ..MaMa ..Baba.. we said no in Chinese and then she repeated MaMa Baba .. then we realized indeed that was Chinese.. she said other words, Wei etc. but knowing the difference between the words that were Chinese and English. We talked about our trip to Vermont she

Here she is with coconuts

said "snow!"! She remembered seeing GiGi (Aunt Gale) and Grandmama and when we talked about going to a restaurant with friends she said oh yeah!! and laughed

We asked who lives with us ..MaMa BaBa and who? ( hoping she would say Sammy the cat) she said Elmo!!.. I guess he does..

really stunning