It was one year ago today that our lives changed. LiLi has grown over 5 inches and gained around 7 pounds in the year. In the beginning we thought she had suffered burns on her legs but it turned out to be a rare skin disorder called EB. We were quite scared at first because in serious cases it can be fatal or the child suffers mutiple serious problems. After finding a specialist in Miami we found that LiLi has a very mild case limited to her legs..she quite possibily will grow out of it in puberty.
LiLi is a real talker ..smarter than we are evidenced by the fact that she finishes our sentences when we can't think of a word (remember we're the old couple).. "did you take your aaah(mom)? ..medicine(LiLi). Just now I went to turn on the tv but couldn't find the remote.. Without any discussion of what I was doing or looking for she said "it's over there" and she was right.
Bedtime can be difficult .. lots of stalling ..LiLi wants another story, milk, needs a diaper change anything to delay .. She likes it when I put my hand on her chest and sing "Hush little LiLi don't you cry, PaPa going to sing you a lullaby"... she corrects me if I get the words wrong.
Last night at bedtime though she grabbed Pam's hand then my hand and looked and me and Pam and said "Mommie, Babba"....we waited...what was it ...another story... .milk...Then after a pause she said "I love you ..good night"
Happy Gotcha Day
John, Pam and LiLi
http://johndubrule2.spaces.live.com/
LiLi is a real talker ..smarter than we are evidenced by the fact that she finishes our sentences when we can't think of a word (remember we're the old couple).. "did you take your aaah(mom)? ..medicine(LiLi). Just now I went to turn on the tv but couldn't find the remote.. Without any discussion of what I was doing or looking for she said "it's over there" and she was right.
Bedtime can be difficult .. lots of stalling ..LiLi wants another story, milk, needs a diaper change anything to delay .. She likes it when I put my hand on her chest and sing "Hush little LiLi don't you cry, PaPa going to sing you a lullaby"... she corrects me if I get the words wrong.
Last night at bedtime though she grabbed Pam's hand then my hand and looked and me and Pam and said "Mommie, Babba"....we waited...what was it ...another story... .milk...Then after a pause she said "I love you ..good night"
Happy Gotcha Day
John, Pam and LiLi
http://johndubrule2.spaces.live.com/
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